Title 42, The Public Health and WelfareRelease 119-110

§300mm–3 Uniform Data Collection and Analysis

Title 42 › CHAPTER 6A — PUBLIC HEALTH SERVICE › SUBCHAPTER XXXI — WORLD TRADE CENTER HEALTH PROGRAM › Part A — Establishment of Program; Advisory Committee › § 300mm–3

Last updated Sep 22, 2026|Official source

Summary

The WTC Program Administrator must collect and analyze the same health and claims data for everyone getting monitoring or treatment under part B. This data must show how common WTC-related health problems are and help spot new ones. Data Centers will put the information into the monitoring and treatment program and make regular reports. Each Clinical Center of Excellence must send its data to its Data Center for analysis. The Data Centers must work with the World Trade Center Health Registry (section 300mm–52). All data must stay private and be handled under the law, including HIPAA privacy and security rules (section 300jj–19(a)(2)) and section 552a of title 5.

Full Legal Text

Title 42, §300mm–3

The Public Health and Welfare, Source: USLM XML via OLRC

(a)In general
The WTC Program Administrator shall provide for the uniform collection of data, including claims data (and analysis of data and regular reports to the Administrator) on the prevalence of WTC-related health conditions and the identification of new WTC-related health conditions. Such data shall be collected for all individuals provided monitoring or treatment benefits under part B and regardless of their place of residence or Clinical Center of Excellence through which the benefits are provided. The WTC Program Administrator shall provide, through the Data Centers or otherwise, for the integration of such data into the monitoring and treatment program activities under this subchapter.
(b)Coordinating through Centers of Excellence
Each Clinical Center of Excellence shall collect data described in subsection (a) and report such data to the corresponding Data Center for analysis by such Data Center.
(c)Collaboration with WTC Health Registry
The WTC Program Administrator shall provide for collaboration between the Data Centers and the World Trade Center Health Registry described in section 300mm–52 of this title.
(d)Privacy
The data collection and analysis under this section shall be conducted and maintained in a manner that protects the confidentiality of individually identifiable health information consistent with applicable statutes and regulations, including, as applicable, HIPAA privacy and security law (as defined in section 300jj–19(a)(2) of this title) and section 552a of title 5.

Reference

Citations & Metadata

Citation

42 U.S.C. § 300mm–3

Title 42, The Public Health and Welfare

Last Updated

Sep 22, 2026

Release point: 119-110