2025-01218Notice

Feds Meet About Baby Genetic Disorders You've Never Heard Of

Published Date: 1/17/2025

Notice

Summary

The Advisory Committee on Heritable Disorders in Newborns and Children is holding a public online meeting on February 13-14, 2025, to discuss improving newborn screening programs. These screenings help catch genetic conditions early, so babies and kids get the care they need fast. Families, healthcare providers, and insurers could see updates that make screenings better and more accessible, with no extra costs for covered health plans.

Analyzed Economic Effects

1 provisions identified: 1 benefits, 0 costs, 0 mixed.

Newborn Screenings Covered Without Cost-Sharing

If the HHS Secretary adopts a condition for newborn screening, non-grandfathered group health plans and health insurance issuers offering non-grandfathered group or individual plans must cover that screening without cost-sharing. That coverage requirement applies for plan years beginning on or after the date that is 1 year from the Secretary's adoption of the condition for screening.

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Key Dates

Published Date
1/17/2025

Department and Agencies

Department
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