CDC Wants Feedback on Form to Track Kid Chronic Fatigue Syndrome
Published Date: 4/28/2026
Notice
Summary
The CDC is asking for your thoughts on a new form to track Chronic Fatigue Syndrome in school kids. They want to make sure the form is useful, clear, and not too much work to fill out. You’ve got 30 days to share your ideas before the government decides, so don’t miss out!
Free Policy Watch
New rules are filed every week. Most people never see them.
Pick a topic. PRIA watches every federal rule and tells you when one hits your household.
Pick a topic to get started
Analyzed Economic Effects
2 provisions identified: 1 benefits, 1 costs, 0 mixed.
Reporting Time Burden on School Staff
If you are a school nurse or school staff asked to participate, CDC estimates the SBAS collection will require an annual total of 951 hours from respondents. The notice lists 20 frontline school nurses, 50 state data coordinators, and 8 school district representatives as respondents and shows per-form burdens (for example, 4 quarterly reports at 9 hours each and a 6-hour demographic collection). CDC says there is no monetary cost to respondents other than their time.
National Rollout to Improve ME/CFS Tracking
If you have children under 18, the CDC plans to expand active surveillance for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) beyond pilot schools to additional schools and other states, and will educate school nurses on ME/CFS and data collection. CDC says this national rollout could help measure ME/CFS symptom burden in children (ME/CFS affects between 0.10% and 0.75% of children) and provide insights to improve healthcare and expedite diagnosis and management.
Your PRIA Score
Personalized for You
How does this regulation affect your finances?
Sign up for a PRIA Policy Scan to see your personalized alignment score for this federal register document and every other regulation we track. We analyze your financial profile against policy provisions to show you exactly what matters to your wallet.
Key Dates
Department and Agencies
Take It Personal
Get Your Personalized Policy View
Take the PRIA Score to see how policy affects your household, then upgrade to PRIA Full Coverage for year-round monitoring.
Already have an account? Sign in