Healthcare Agency Seeks Input on Disability Care Surveys
Published Date: 11/28/2025
Notice
Summary
The Agency for Healthcare Research and Quality wants to keep collecting survey data about people’s experiences with home and community-based health services for another three years—no changes, just an extension. This affects adults with disabilities who use Medicaid programs and helps states and researchers improve care quality. If you have thoughts, you’ve got until January 27, 2026, to share them!
Analyzed Economic Effects
4 provisions identified: 3 benefits, 1 costs, 0 mixed.
Three-Year Extension of HCBS Survey
AHRQ will continue collecting the HCBS-CAHPS survey data for another three years without changes. This continuation supports ongoing comparisons across state Medicaid home- and community-based services and applies to adults with disabilities who receive Medicaid HCBS services.
Respondent Time and Cost Burden
AHRQ estimates the annual burden on respondents as 63 hours total and an annualized cost burden of $6,940. The estimate covers 51 program points-of-contact and about 13 survey vendors that will register, submit data files, and sign data use agreements.
De-identified Data Shared for Quality Work
AHRQ will collect and make available de-identified HCBS-CAHPS survey data to states, agency programs, and researchers and will produce aggregated results and feedback reports. These reports are intended to help programs identify strengths and areas for improvement in patient care.
Survey Metrics May Inform Value-Based Purchasing
CMS-developed HCBS-CAHPS metrics may be used voluntarily by states with adequate sample sizes to inform value-based purchasing initiatives. States that submit adequate survey data could consider using these metrics in payment or quality programs.
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Key Dates
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