CDC Asks for Comments on HIV Data Form (Again)
Published Date: 7/13/2026
Notice
Summary
The CDC wants your thoughts on a plan to collect info about adults with HIV to help improve health services and track treatment success. This affects people living with HIV and the organizations that support them. Comments are open until September 11, 2026, and this effort aims to keep data collection useful without adding extra hassle or costs.
Analyzed Economic Effects
4 provisions identified: 2 benefits, 1 costs, 1 mixed.
Adults with HIV: Interview and Records
If you are an adult diagnosed with HIV, the CDC may ask you to consent to an interview and to have your medical record abstracted as part of the Medical Monitoring Project. The typical interview averages 40 minutes (40/60 hours), participation is voluntary, and deidentified surveillance data will be used to guide HIV services and monitor treatment outcomes.
Clinic Staff Time for MMP Activities
Facility office staff will spend small amounts of time supporting the project: 1,900 staff entries for contact lookup at 2 minutes each (total 63 hours), 950 staff contacts for recruitment at 5 minutes each (total 79 hours), and tasks to pull medical records for 7,600 sampled persons at 3 minutes each (total 380 hours). Those staff time commitments are part of the project’s estimated annual burden of 5,589 hours.
Data Supplement for 23 Health Departments
The Medical Monitoring Project will supplement the National HIV Surveillance System in 23 selected state and local health departments to produce national estimates of care, service use, and clinical outcomes for adults with diagnosed HIV. The CDC says these nationally representative data will be used to monitor ongoing care and to inform program and resource decisions.
Sample Size and Burden Slightly Reduced
CDC reduced the total number of persons to be sampled from 9,700 to 9,500, and estimates total annual burden hours decreased from 5,707 to 5,589 hours. The OMB control number for this collection is 0920-0740 (expiration 2027-05-31) and comments on the proposed collection are due by September 11, 2026.
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