Rate Your Marrow Transplant Support: HRSA Wants Survey Feedback
Published Date: 9/29/2026
Notice
Summary
The Health Resources and Services Administration (HRSA) is asking for public feedback on a survey that checks how happy patients and their families are with the National Marrow Donor Program’s support services. This survey helps improve care for people needing or having had a bone marrow transplant. Comments are open until October 29, 2026, and there’s no cost to participate—just your honest thoughts!
Analyzed Economic Effects
5 provisions identified: 4 benefits, 1 costs, 0 mixed.
Web survey sent to PSC contacts
If you are a patient, caregiver, or family member who contacts the National Marrow Donor Program Patient Support Center (PSC) and the PSC has your email address, you will be invited to complete a web-based satisfaction survey. The survey is sent once in a 1-year cycle (a second survey is sent only if you contact the PSC again 1 or more years after the initial contact), and non-respondents get a follow-up invitation within 2 weeks.
Estimated time to complete survey
HRSA estimates 1,000 people will complete the PSC survey each year, with each survey taking about 4.5 minutes (0.075 hours), for a total estimated annual respondent burden of 75 hours.
Survey question wording and education option updated
HRSA revised some survey questions and phrasing to improve clarity and added one response option to the education-level question, without changing instructions, frequency of collection, or use of the information.
Possible future survey modes under review
HRSA considered a comment recommending survey administration by Short Message Service (SMS) and said it will review the use of SMS or other technologies for cost and implementation and complete that review and implement changes, if appropriate, by December 31, 2028.
Survey data used to guide program improvements
Survey responses will be analyzed quarterly and annually and shared with program managers; feedback that indicates a need for improvement will be reviewed semiannually and any program changes or additions will be documented. Program managers and NMDP leadership use the results to understand patient experiences and inform program and resource allocation decisions.
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Key Dates
Department and Agencies
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