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119-hr-10531119th CongressWALLET

Sickle Cell Disease Treatment Centers Act of 2026

Sponsored By: Representative Adams, Alma S. [D-NC-12]

Introduced

Summary

Hub-and-spoke Sickle Cell Disease Treatment Centers would be created through federal grants to build coordinated, lifelong care networks for people with sickle cell disease and related hemoglobinopathies and to fund a National Sickle Cell Disease Coordinating Center to guide strategy, data, and quality improvement.

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  • Families and patients: People with SCD would gain access to coordinated specialty and primary care, telehealth where feasible, pediatric-to-adult transition programs, reproductive health coordination, and support services like social work and community health workers.
  • Community groups and underserved areas: Community-based nonprofits would run outreach and address social drivers of health such as food, housing, education, and transportation. Grants may prioritize partnerships with historically Black colleges and universities or minority-serving institutions and target high-burden and rural regions.
  • Providers and health systems: Eligible networks must include a medical hub with a designated SCD expert plus spokes. Grants would fund provider education, data reporting to CDC’s Sickle Cell Data Collection, quality improvement, and assistance getting patients into insurance and reimbursement pathways.

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Bill Overview

Analyzed Economic Effects

3 provisions identified: 3 benefits, 0 costs, 0 mixed.

Grants for local sickle cell centers

If enacted, the bill would let HHS award grants to create hub-and-spoke sickle cell treatment centers. Grants would fund coordinated lifelong care, pediatric-to-adult transitions, telehealth, and community supports. Grant money could help with travel, insurance enrollment, and premiums or cost-sharing only as allowed by law. Eligible applicants would need a medical hub, at least one spoke site, and a partnering community nonprofit.

How program money would be split

If enacted, the bill would authorize funds starting in fiscal year 2027 to run the treatment center program. Of amounts appropriated each year, 70% could fund hub-and-spoke networks, 20% community groups, 5% a national coordinating center, and 5% CDC data work. The bill would also require these activities to supplement, not replace, existing HHS sickle cell programs.

National center, data, and strategy

If enacted, the bill would create or fund a National Sickle Cell Disease Coordinating Center to advise HHS and coordinate grantees. The Center would develop a national care strategy, convene a rotating stakeholder panel, and support quality improvement. The CDC would collect and share data on sickle cell disease and produce education, and reporting must include migrants and foreign-born patients.

Sponsors & CoSponsors

Sponsor

Adams, Alma S. [D-NC-12]

NC • D

Cosponsors

  • Rep. Davis, Danny K. [D-IL-7]

    IL • D

    Sponsored 9/24/2026

  • Rep. Ivey, Glenn [D-MD-4]

    MD • D

    Sponsored 9/24/2026

Roll Call Votes

No roll call votes available for this bill.

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