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119-hr-3491119th CongressWALLET

DeOndra Dixon INCLUDE Project Act of 2025

Sponsored By: Representative DeGette, Diana [D-CO-1]

Passed House

Summary

This bill would establish the INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE Project, or INCLUDE Project, at the National Institutes of Health to coordinate and expand Down syndrome research across the lifespan.

Show full summary
  • Families and caregivers: Funds research to improve diagnosis, treatment, and daily living supports and to study co-occurring conditions such as Alzheimer’s disease.
  • Researchers and clinical trials: Promotes high-risk, high-reward studies, cohort research, and more clinical trials that are inclusive of or focused on people with Down syndrome.
  • NIH coordination and oversight: Directs the NIH Director to coordinate work across institutes, avoid duplicate research, consult stakeholders, and provide biennial reports to Congress listing involved institutes and any real-world evidence used.

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Bill Overview

Analyzed Economic Effects

1 provisions identified: 1 benefits, 0 costs, 0 mixed.

More NIH research for Down syndrome families

If enacted, NIH would run the INCLUDE Project focused on Down syndrome. It would fund high‑risk research, lifespan studies, and more clinical trials for people with Down syndrome. It would study co‑occurring conditions like Alzheimer’s and autoimmunity, find biomarkers, and test new therapies to help daily living. NIH would coordinate work across its centers, avoid duplicate studies, and consult patient advocates. It would report to Congress every two years on projects and any real‑world evidence. The program would start upon enactment.

Sponsors & CoSponsors

Sponsor

DeGette, Diana [D-CO-1]

CO • D

Cosponsors

  • Rep. Hudson, Richard [R-NC-9]

    NC • R

    Sponsored 5/19/2025

  • Rep. DeLauro, Rosa L. [D-CT-3]

    CT • D

    Sponsored 5/19/2025

  • Rep. Cole, Tom [R-OK-4]

    OK • R

    Sponsored 5/19/2025

  • Del. Norton, Eleanor Holmes [D-DC-At Large]

    DC • D

    Sponsored 5/19/2025

  • Rep. Stauber, Pete [R-MN-8]

    MN • R

    Sponsored 5/19/2025

  • Rep. Tonko, Paul [D-NY-20]

    NY • D

    Sponsored 10/10/2025

  • Rep. Pettersen, Brittany [D-CO-7]

    CO • D

    Sponsored 10/10/2025

  • Rep. Craig, Angie [D-MN-2]

    MN • D

    Sponsored 10/10/2025

  • Rep. Crow, Jason [D-CO-6]

    CO • D

    Sponsored 11/12/2025

  • Rep. Neguse, Joe [D-CO-2]

    CO • D

    Sponsored 11/19/2025

  • Rep. Pocan, Mark [D-WI-2]

    WI • D

    Sponsored 1/7/2026

  • Rep. Wagner, Ann [R-MO-2]

    MO • R

    Sponsored 2/11/2026

  • Rep. Ross, Deborah K. [D-NC-2]

    NC • D

    Sponsored 2/13/2026

  • Rep. Kustoff, David [R-TN-8]

    TN • R

    Sponsored 2/20/2026

  • Rep. Subramanyam, Suhas [D-VA-10]

    VA • D

    Sponsored 3/3/2026

  • Rep. Nadler, Jerrold [D-NY-12]

    NY • D

    Sponsored 3/3/2026

  • Rep. Walkinshaw, James R. [D-VA-11]

    VA • D

    Sponsored 3/3/2026

  • Rep. Wittman, Robert J. [R-VA-1]

    VA • R

    Sponsored 3/16/2026

Roll Call Votes

No roll call votes available for this bill.

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