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119-hr-8794119th CongressWALLET

FED UP with Bleeding Disorders Act of 2026

Sponsored By: Representative Johnson, Julie [D-TX-32]

Introduced

Summary

Improve diagnosis, treatment, and awareness of bleeding disorders in women and girls, with special focus on reaching rural and underserved communities. This bill would require the Department of Health and Human Services to lead an interagency review, publish a public report within two years, solicit public comment, and fund a nationwide education and outreach campaign.

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  • Women, girls, and families: Would target inheritable bleeding disorders such as hemophilia and von Willebrand disease, identify barriers to timely diagnosis, and push to expand access to hemophilia treatment centers and other care in rural and underserved areas.
  • Providers and researchers: Would promote provider training and education, push for greater inclusion of women and girls in clinical research, and recommend better coordination across agencies including CMS, HRSA, CDC, NIH, VA, the Defense Health Agency, and FDA.
  • Public health departments, schools, and communities: Would fund competitive grants or contracts for an evidence-based awareness campaign that supplies culturally and linguistically appropriate resources, uses benchmarks and qualitative evaluation, and is authorized at $10.0 million per year for FY2027–FY2031.

*This bill would authorize $10.0 million per year for FY2027 through FY2031, increasing federal spending by $50.0 million over that period.*

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Bill Overview

Analyzed Economic Effects

1 provisions identified: 1 benefits, 0 costs, 0 mixed.

Campaign for women and girls' bleeding disorders

This bill would direct HHS to fund a nationwide education and awareness campaign about bleeding disorders in women and girls. Within one year after the HHS review report is published, HHS would award competitive grants or contracts to run the campaign. The campaign would target clinicians, schools, public health departments, and healthcare facilities and must include rural outreach and culturally and linguistically appropriate materials. The bill would authorize $10,000,000 per year for each fiscal year 2027 through 2031 and require benchmarks and a final evaluation report. The bill would also define "bleeding disorder" to include inheritable clotting problems like hemophilia and von Willebrand disease. It would cover prolonged internal or external bleeding, including bleeding during menstruation and childbirth.

Sponsors & CoSponsors

Sponsor

Johnson, Julie [D-TX-32]

TX • D

Cosponsors

  • Rep. Wilson, Joe [R-SC-2]

    SC • R

    Sponsored 5/13/2026

  • Rep. McBride, Sarah [D-DE-At Large]

    DE • D

    Sponsored 5/13/2026

  • Del. Norton, Eleanor Holmes [D-DC-At Large]

    DC • D

    Sponsored 6/8/2026

Roll Call Votes

No roll call votes available for this bill.

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