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119-hres-1223119th Congress

Expressing support for the designation of Undiagnosed Awareness Month.

Sponsored By: Representative Pocan, Mark [D-WI-2]

Introduced

Summary

A national spotlight on people living with undiagnosed diseases. This resolution would designate April as Undiagnosed Awareness Month and April 29 as Undiagnosed Day to honor patients and support diagnosis, research, and clinician education.

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  • Families and patients: Recognizes prolonged uncertainty, delayed or inappropriate treatment, psychological distress, and financial hardship for people without a diagnosis. The resolution notes the average diagnostic journey for rare or ultrarare diseases can last over seven years.
  • Clinicians and researchers: Highlights the Undiagnosed Diseases Network's use of genomic sequencing, model organism research, and artificial intelligence to improve diagnosis. The network has diagnosed more than 1,000 Americans and discovered over 90 novel diagnoses.
  • Federal and patient groups: Notes the National Institutes of Health included an objective to increase the Network's capacity by 2027 and recognizes the patient-driven Undiagnosed Diseases Network Foundation that supports access, research, and community for families.

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Bill Overview

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Sponsors & CoSponsors

Sponsor

Pocan, Mark [D-WI-2]

WI • D

Cosponsors

  • Rep. Cline, Ben [R-VA-6]

    VA • R

    Sponsored 4/28/2026

  • Del. Norton, Eleanor Holmes [D-DC-At Large]

    DC • D

    Sponsored 4/28/2026

  • Rep. Rutherford, John H. [R-FL-5]

    FL • R

    Sponsored 4/28/2026

  • Rep. Amodei, Mark E. [R-NV-2]

    NV • R

    Sponsored 6/29/2026

  • Rep. Subramanyam, Suhas [D-VA-10]

    VA • D

    Sponsored 6/29/2026

Roll Call Votes

No roll call votes available for this bill.

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