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119-hres-1631119th Congress
Expressing support for the designation of the third week of October as "National Hunter Syndrome Awareness Week".
Sponsored By: Representative Foushee, Valerie P. [D-NC-4]
Introduced
Summary
Raise awareness and spur research for Hunter syndrome. This resolution would designate the third week of October as National Hunter Syndrome Awareness Week and urge federal agencies, research institutions, advocacy groups, and Congress to expand education, early diagnosis efforts, and development of treatments for Mucopolysaccharidosis Type II (Hunter syndrome).
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- Families and patients: Recognizes the heavy emotional, financial, and medical burdens on households and urges initiatives that directly benefit affected individuals and caregivers.
- Medical and research community: Calls for expanded education and research on diagnosis and treatments, noting that early diagnosis and intervention improve outcomes.
- Advocates and policymakers: Encourages public awareness campaigns and urges continued congressional support for rare disease research funding and related initiatives.
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Bill Overview
No Economic Impacts Identified for this Bill
Sponsors & CoSponsors
Sponsor
Foushee, Valerie P. [D-NC-4]
NC • D
Cosponsors
There are no cosponsors for this bill.
Roll Call Votes
No roll call votes available for this bill.
View on Congress.gov