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119-s-1838119th CongressWALLET
DeOndra Dixon INCLUDE Project Act of 2026
Sponsored By: Senator Hickenlooper, John W. [D-CO]
Passed Senate
Summary
A coordinated NIH research program focused on Down syndrome across the lifespan. This bill would create the INCLUDE Project to direct research on biological causes, co-occurring conditions such as Alzheimer's and autoimmune disease, biomarkers, and inclusive clinical trials that aim to improve daily living and quality of life for people with Down syndrome and their families.
Show full summary
- Families and people with Down syndrome would see research aimed at better diagnosis, biomarkers, new therapies, and interventions to improve activities of daily living and long-term health.
- Researchers and clinicians would gain a structured program for high-risk, lifespan-spanning studies, more clinical trials that include or focus on people with Down syndrome, and training to expand the research workforce.
- The National Institutes of Health would be required to coordinate across institutes, consult patient advocates and other stakeholders, and provide biennial reports to Congress cataloging supported research and any real-world evidence relevant to care.
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Bill Overview
Analyzed Economic Effects
1 provisions identified: 1 benefits, 0 costs, 0 mixed.
More Down syndrome research at NIH
If enacted, NIH would start the INCLUDE Project for Down syndrome. It would fund high-risk studies on how trisomy 21 affects health and development across life. It would expand clinical trials for people with Down syndrome, including new drugs and therapies that help daily life. Research would examine biological changes tied to structural, functional, behavioral issues, and growth stunting. It would improve diagnosis and treatment of co-occurring conditions, find biomarkers, and study higher risks for Alzheimer’s and autoimmunity. It would also support training and projects to improve life for people with Down syndrome and their families. NIH would coordinate across its centers, consult patient advocates, and report to Congress every two years. Reports would list projects and any real-world evidence useful for patient care. The bill would not set funding amounts.
Sponsors & CoSponsors
Sponsor
Hickenlooper, John W. [D-CO]
CO • D
Cosponsors
Rep. Mullin, Markwayne [R-OK-2]
OK • R
Sponsored 5/21/2025
Sen. Bennet, Michael F. [D-CO]
CO • D
Sponsored 7/28/2025
Sen. Padilla, Alex [D-CA]
CA • D
Sponsored 9/16/2025
Sen. Capito, Shelley Moore [R-WV]
WV • R
Sponsored 9/16/2025
Sen. Coons, Christopher A. [D-DE]
DE • D
Sponsored 10/8/2025
Sen. Van Hollen, Chris [D-MD]
MD • D
Sponsored 10/8/2025
Sen. Moran, Jerry [R-KS]
KS • R
Sponsored 5/21/2025
Sen. Booker, Cory A. [D-NJ]
NJ • D
Sponsored 5/21/2025
Sen. Ossoff, Jon [D-GA]
GA • D
Sponsored 8/4/2026
Roll Call Votes
No roll call votes available for this bill.
View on Congress.gov