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119-s-735119th CongressWALLET

Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2025

Sponsored By: Senator Scott, Tim [R-SC]

Introduced

Summary

Expanded treatment and higher funding for sickle cell programs. This bill would broaden the existing sickle cell demonstration program to cover treatment of sickle cell disease and the prevention and treatment of its complications.

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  • People with sickle cell disease and their families would get program support for treatment and for preventing and treating complications.
  • Health providers and community organizations could receive grants, contracts, or cooperative agreements, widening who can get federal support.
  • Researchers and public health officials would get a formal signal that Congress supports more research into causes and cures for heritable blood disorders, including sickle cell disease.
  • The bill would set annual funding at $8.2 million for each fiscal year 2025–2029, up from $4.5 million in prior years.

*This bill would increase federal spending by raising the program's authorized annual funding to $8.2 million for FY2025–2029.*

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Bill Overview

Analyzed Economic Effects

1 provisions identified: 1 benefits, 0 costs, 0 mixed.

More sickle cell program support

If enacted, this bill would expand the sickle cell demonstration program to fund treatment and prevention of complications. It would authorize $8.205 million per year for fiscal years 2025–2029. The HHS Secretary would be able to use grants, contracts, or cooperative agreements to give money to states and providers. Funds would be available only if Congress appropriates them. People with sickle cell disease could see more services for managing pain, infections, and other complications.

Sponsors & CoSponsors

Sponsor

Scott, Tim [R-SC]

SC • R

Cosponsors

  • Sen. Booker, Cory A. [D-NJ]

    NJ • D

    Sponsored 2/26/2025

  • Sen. Warnock, Raphael G. [D-GA]

    GA • D

    Sponsored 12/8/2025

  • Sen. Ossoff, Jon [D-GA]

    GA • D

    Sponsored 12/18/2025

Roll Call Votes

No roll call votes available for this bill.

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