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119-sres-292119th Congress

A resolution expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.

Sponsored By: Senator Booker, Cory A. [D-NJ]

Introduced

Summary

This resolution would designate June 19, 2025 as World Sickle Cell Awareness Day and advance _equitable access to sickle cell disease treatments_. It emphasizes public awareness, newborn screening, more research into therapies, and confronting bias in care.

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  • Families and patients: Would promote awareness campaigns, newborn screening, and support services to speed diagnosis and management. About 100,000 people in the United States have sickle cell disease.
  • Medicare and Medicaid beneficiaries: Calls for removing barriers to innovative treatments, including cell and gene therapies, to improve access for vulnerable patients.
  • Global and resource-poor communities: Urges HHS to help mobilize resources and policies for newborn screening and treatment where up to 90 percent of children with SCD in some settings do not survive to adulthood.
  • Federal coordination: Urges the President to form an interagency Sickle Cell Disease group to advise on equitable access to potential curative therapies and to address bias in health care systems.

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Bill Overview

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Sponsors & CoSponsors

Sponsor

Booker, Cory A. [D-NJ]

NJ • D

Cosponsors

  • Sen. Van Hollen, Chris [D-MD]

    MD • D

    Sponsored 6/18/2025

  • Sen. Alsobrooks, Angela D. [D-MD]

    MD • D

    Sponsored 6/23/2025

Roll Call Votes

No roll call votes available for this bill.

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