Endometriosis CARE Act
Sponsored By: Representative Williams, Nikema [D-GA-5]
Introduced
Summary
Would create a federal program to expand national efforts on endometriosis by funding research, building better data systems, and improving access to treatment. This bill would push agencies to study disparities, educate the public and clinicians, and catalog existing research to speed better care and treatments.
Show full summary
- Patients and families: It directs public education on incidence, prevalence, and disparities and funds culturally and linguistically appropriate materials, authorizing $2.0 million per year for 2026–2030.
- Health care professionals: HHS must distribute evidence-based guidance to improve detection, diagnosis, and patient communication, backed by $2.0 million per year for 2026–2030.
- Research, data, and federal programs: The National Institutes of Health would get $50.0 million per year for 2026–2030 to support research, surveillance, and an online clearinghouse. HHS would analyze barriers to treatment, may require reporting from group health plans, issuers, Medicaid and CHIP including Transformed Medicaid Statistical Information System (T-MSIS) data, and must commission a National Academies disparities study with $500,000 authorized.
*This bill would increase federal spending by about $270.5 million over fiscal years 2026–2030.*
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Bill Overview
Analyzed Economic Effects
5 provisions identified: 5 benefits, 0 costs, 0 mixed.
More endometriosis research funding
If enacted, NIH would fund data collection, surveillance, and research on endometriosis to improve treatments and pursue a cure. NIH could create or expand an online clearinghouse of research and treatment information for patients and clinicians. The bill would authorize $50 million each year from 2026 through 2030 for these activities.
More public information on endometriosis
If enacted, HHS would develop and share public information about endometriosis with a focus on racial and ethnic minority groups and other underserved communities. Materials would cover awareness, incidence, culturally appropriate mental health supports, and available medically appropriate treatments. The bill would authorize $2 million each year from 2026 through 2030 for this outreach.
New endometriosis guidance for providers
If enacted, HHS would develop and share evidence-based guidance to help clinicians detect, diagnose, and treat endometriosis and communicate with patients. The Secretary must consult relevant professional societies when developing the materials. The bill would authorize $2 million each year from 2026 through 2030 to do this work.
Study barriers to endometriosis care
If enacted, HHS would study barriers people with endometriosis face getting treatment, including transportation problems and shortages of health care professionals. HHS could use Medicaid and CHIP data and ask group health plans, issuers, and State programs to provide data, while protecting patient privacy. The Secretary would publish findings and send a report to Congress within two years.
Study disparities in endometriosis care
If enacted, the Secretary would ask the National Academies to study disparities in endometriosis detection, treatment, and outcomes by race, ethnicity, geography, language, sexual orientation, gender identity, disability status, and insurance status. The Academies would give recommendations and report to Congress within 24 months. The bill would authorize $500,000 for the study.
Sponsors & CoSponsors
Sponsor
Williams, Nikema [D-GA-5]
GA • D
Cosponsors
Rep. Underwood, Lauren [D-IL-14]
IL • D
Sponsored 12/11/2025
Adams
NC • D
Sponsored 12/11/2025
Cisneros
CA • D
Sponsored 12/11/2025
Rep. Clarke, Yvette D. [D-NY-9]
NY • D
Sponsored 12/11/2025
Friedman
CA • D
Sponsored 12/11/2025
Rep. Frost, Maxwell [D-FL-10]
FL • D
Sponsored 12/11/2025
Rep. Goldman, Daniel S. [D-NY-10]
NY • D
Sponsored 12/11/2025
Rescom. Hernández, Pablo Jose [D-PR-At Large]
PR • D
Sponsored 12/11/2025
Kennedy (NY)
NY • D
Sponsored 12/11/2025
Rep. McIver, LaMonica [D-NJ-10]
NJ • D
Sponsored 12/11/2025
Del. Norton, Eleanor Holmes [D-DC-At Large]
DC • D
Sponsored 12/11/2025
Rep. Pocan, Mark [D-WI-2]
WI • D
Sponsored 12/11/2025
Scott, David
GA • D
Sponsored 12/11/2025
Rep. Tlaib, Rashida [D-MI-12]
MI • D
Sponsored 12/11/2025
Rep. Tonko, Paul [D-NY-20]
NY • D
Sponsored 12/11/2025
Rep. Watson Coleman, Bonnie [D-NJ-12]
NJ • D
Sponsored 12/11/2025
Bishop
GA • D
Sponsored 12/11/2025
Rep. Moulton, Seth [D-MA-6]
MA • D
Sponsored 12/11/2025
Rep. Brown, Shontel M. [D-OH-11]
OH • D
Sponsored 12/11/2025
Lofgren
CA • D
Sponsored 12/11/2025
Rep. Gottheimer, Josh [D-NJ-5]
NJ • D
Sponsored 12/11/2025
Trahan
MA • D
Sponsored 12/30/2025
Rep. McClain Delaney, April [D-MD-6]
MD • D
Sponsored 12/30/2025
Rep. Vargas, Juan [D-CA-52]
CA • D
Sponsored 5/13/2026
Roll Call Votes
No roll call votes available for this bill.
View on Congress.gov