Shane DiGiovanna Act

Medicaid wound-care pilot for epidermolysis bullosa

If enacted, this bill would require HHS to start a nationwide, 2-year Medicaid demonstration for people with epidermolysis bullosa. The demonstration would begin not later than 1 year after enactment. During the demonstration, Medicaid plans or waivers would be required to cover items and services for treatment, including over-the-counter antihistamines, acetaminophen, nonsteroidal anti-inflammatory drugs, antiseptics, zinc oxide, antibiotic ointments, and necessary wound-care supplies (primary and secondary dressings, gauze, and bandage retainers). Not later than 1 year after the demonstration ends, HHS would report to Congress on program spending effects, health outcomes compared to before the demonstration, and recommendations to prevent hospitalizations related to the condition.