IllinoisHB3494104th General Assembly (2025–2026)House

HEALTH DATA PRIVACY ACT

Sponsored By: Mary Beth Canty (Democratic)

In Committee

Summary

Creates the Protect Health Data Privacy Act. Provides that a regulated entity shall disclose and maintain a health data privacy policy that clearly and conspicuously discloses specified information. Sets forth provisions concerning health data privacy policies. Provides that a regulated entity shall not collect, share, or store health data, except in specified circumstances. Provides that it is unlawful for any person to sell or offer to sell health data concerning an individual without first obtaining valid authorization from the individual. Provides that a valid authorization to sell individual health data must contain specified information; a copy of the signed valid authorization must be provided to the individual; and the seller and purchaser of health data must retain a copy of all valid authorizations for sale of health data for 6 years after the date of its signature or the date when it was last in effect, whichever is later. Sets forth provisions concerning the consent required for collection, sharing, and storage of health data. Provides that an individual has the right to withdraw consent from the processing of the individual's health data. Provides that it is unlawful for a regulated entity to engage in discriminatory practices against individuals solely because they have not provided consent to the processing of their health data or have exercised any other rights provided by the provisions or guaranteed by law. Sets forth provisions concerning an individual's right to confirm whether a regulated entity is collecting, selling, sharing, or storing any of the individual's health data; an individual's right to have the individual's health data that is collected by a regulated entity deleted; prohibitions regarding geofencing; and individual health data security. Provides that any person aggrieved by a violation of the provisions shall have a right of action in a State circuit court or as a supplemental claim in federal district court against an offending party. Provides that the Attorney General may enforce a violation of the provisions as an unlawful practice under the Consumer Fraud and Deceptive Business Practices Act. Defines terms. Makes a conforming change in the Consumer Fraud and Deceptive Business Practices Act.

judiciary - civil

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Bill Overview

No Economic Impacts Identified for this Bill

Sponsors & Cosponsors

Sponsor

  • Mary Beth Canty

    Democratic • House

Cosponsors

  • Aarón M. Ortíz

    Democratic • House

  • Ann M. Williams

    Democratic • House

  • Anna Moeller

    Democratic • House

  • Anne Stava

    Democratic • House

  • Barbara Hernandez

    Democratic • House

  • Camille Y. Lilly

    Democratic • House

  • Dagmara Avelar

    Democratic • House

  • Daniel Didech

    Democratic • House

  • Diane Blair-Sherlock

    Democratic • House

  • Elizabeth "Lisa" Hernandez

    Democratic • House

  • Janet Yang Rohr

    Democratic • House

  • Jay Hoffman

    Democratic • House

  • Jennifer Gong-Gershowitz

    Democratic • House

  • Justin Cochran

    Democratic • House

  • Justin Slaughter

    Democratic • House

  • Kam Buckner

    Democratic • House

  • Katie Stuart

    Democratic • House

  • Kelly M. Cassidy

    Democratic • House

  • Kevin John Olickal

    Democratic • House

  • Laura Faver Dias

    Democratic • House

  • Lilian Jiménez

    Democratic • House

  • Lisa Davis

    Democratic • House

  • Marcus C. Evans, Jr.

    Democratic • House

  • Margaret Croke

    Democratic • House

  • Maura Hirschauer

    Democratic • House

  • Michael Crawford

    Democratic • House

  • Nabeela Syed

    Democratic • House

  • Nicolle Grasse

    Democratic • House

  • Norma Hernandez

    Democratic • House

  • Rita Mayfield

    Democratic • House

  • Robyn Gabel

    Democratic • House

  • Stephanie A. Kifowit

    Democratic • House

  • Theresa Mah

    Democratic • House

  • Tracy Katz Muhl

    Democratic • House

  • Will Guzzardi

    Democratic • House

Roll Call Votes

All Roll Calls

Yes: 16 • No: 9

House vote • 2/17/2026

Approved for Consideration Rules Committee;

Yes: 3 • No: 2

House vote • 3/19/2025

Do Pass / Short Debate Judiciary - Civil Committee;

Yes: 13 • No: 7

Bill Text

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