BATTEN DISEASE AWARENESS DAY
Sponsored By: Janet Yang Rohr (Democratic)
In Committee
Summary
Declares June 9, 2025 as Batten Disease Awareness Day in the State of Illinois in order to recognize and bring awareness to the rare disease population, including those living with Batten disease in Illinois, and to recognize the heroic and tireless efforts of Dr. Elizabeth Berry-Kravis and her esteemed colleagues at Rush University Medical Center as they attempt to save children afflicted with Batten disease by searching for treatments and a cure. Commends Charlie Sims for advancing the scientific development of treatments for Batten disease for children everywhere, his family and friends for valiantly facing the difficulties of Batten disease, and the ongoing efforts of Team Charlie in their continued work of finding hope, giving love, and being good.
Your PRIA Score
Personalized for You
How does this bill affect your finances?
Sign up for a PRIA Policy Scan to see your personalized alignment score for this bill and every other piece of legislation we track. We analyze your financial profile against policy provisions to show you exactly what matters to your wallet.
Bill Overview
No Economic Impacts Identified for this Bill
Sponsors & Cosponsors
Sponsor
Janet Yang Rohr
Democratic • House
Cosponsors
There are no cosponsors for this bill.
Roll Call Votes
No roll call votes available for this bill.
Actions Timeline
Referred to Rules Committee
5/27/2025HouseFiled with the Clerk by Rep. Janet Yang Rohr
5/23/2025House
Bill Text
Introduced
Related Bills
HB4154 — PHARMACIST APPLICATION/EXAM
HB4890 — UNACCOMPANIED CHILDREN
Creates the Dependency Determinations for Unaccompanied Children Act. Creates a process for an unaccompanied child in the custody of the federal Office of Refugee Resettlement housed in Illinois who is alleged to have been abused, neglected, or abandoned by one or both parents to file a petition seeking a finding of dependency under the Act. Provides that a child declared dependent is eligible for oversight and services as ordered by the court and may be referred for psychological, educational, medical, or social services deemed necessary as a result of parental abuse, abandonment, or neglect or for protection against trafficking or domestic violence. Defines terms. Makes legislative findings. Effective immediately.
HB0598 — GOVERNMENT-TECH
Amends the Salaries Act. Makes a technical change in a Section concerning the short title.
SB0314 — BUSINESS-TECH
Amends the Business Corporation Act of 1983. Makes a technical change in a Section concerning the short title.
HB3428 — LONG-TERM CARE JOINT TRAINING
Amends the Nursing Home Care Act and the Assisted Living and Shared Housing Act. Requires the Department of Public Health to hold semiannual joint training sessions for surveyors, nursing home providers, and assisted living establishment providers. Provides that the Department shall include the State long-term care ombudsman, or the State long-term care ombudsman's designee, and representatives of each nursing home provider association and assisted living provider association in the State in the planning process to create the topics and content of the joint training sessions as well as the coordination and presentations for the joint training sessions. Provides that, at least annually, a joint training session shall include, but not be limited to, regional citation patterns relating to complaints, standards, and outcomes in the nursing home and assisted living survey process. Requires the Department to develop standardized training for establishments to prevent common citations in the assisted living survey process.
SB1265 — ENVTL BARRIER-ENFORCEMENT DATA
Amends the Environmental Barriers Act. Requires the Attorney General to provide, by January 31, 2026 and every January 31 thereafter (rather than by July 31, 2020 and every July 31 thereafter), data on the Attorney General's website about annual enforcement efforts performed under the Act. Effective immediately.