IllinoisSB3049104th General Assembly (2025–2026)SenateWALLET

NEWBORN METABOLIC SCREENING

Sponsored By: Julie A. Morrison (Democratic)

Signed by Governor

Summary

Amends the Genetic and Metabolic Diseases Advisory Committee Act. Changes the name of the Genetic and Metabolic Diseases Advisory Committee to the Universal Newborn Screening Advisory Committee. Adds duties for the Committee, including duties to hold quarterly meetings, review conditions, make recommendations, and prepare reports. Makes conforming changes in the short title of the Act, the Newborn Metabolic Screening Act, and the Rare Disease Commission Act. Effective immediately.

assignmentspublic health

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Bill Overview

Analyzed Economic Effects

2 provisions identified: 2 benefits, 0 costs, 0 mixed.

More newborn conditions reviewed for screening

The advisory committee reviews new conditions added to the federal newborn screening list within 12 months. Starting January 1, 2027, this deadline applies to newly added conditions; conditions already on the list but not screened in Illinois must be reviewed within one year after the law takes effect. Other conditions are reviewed within one year after both a screening test and an FDA-approved treatment or intervention are available. Before screening starts, the state must confirm test performance, quality checks, equipment, test thresholds, pilot testing, and capacity for statewide testing. If the Department approves a condition, it must notify the State Laboratory within 60 days, and the lab has two years to start screening. Review does not guarantee a condition will be added.

Public gets more newborn screening education

The Department of Public Health must run an intensive education program about disorders included in newborn screening. The program must include physicians, hospitals, public health nurses, and the public. The law does not set a household payment or guarantee a change in screening access.

Sponsors & Cosponsors

Sponsor

  • Julie A. Morrison

    Democratic • Senate

Cosponsors

  • Camille Y. Lilly

    Democratic • House

  • Cristina Castro

    Democratic • Senate

  • Graciela Guzmán

    Democratic • Senate

  • Jehan Gordon-Booth

    Democratic • House

  • Lakesia Collins

    Democratic • Senate

  • Marcus C. Evans, Jr.

    Democratic • House

  • Martha Deuter

    Democratic • House

  • Mary Edly-Allen

    Democratic • Senate

  • Mattie Hunter

    Democratic • Senate

  • Michael Crawford

    Democratic • House

  • Michelle Mussman

    Democratic • House

  • Nicolle Grasse

    Democratic • House

  • Sara Feigenholtz

    Democratic • Senate

Roll Call Votes

All Roll Calls

Yes: 245 • No: 0

Senate vote • 5/31/2026

House Committee Amendment No. 1 Senate Concurs

Yes: 54 • No: 0

Senate vote • 5/28/2026

House Committee Amendment No. 1 Motion To Concur Recommended Do Adopt Public Health;

Yes: 8 • No: 0

House vote • 5/21/2026

Third Reading - Short Debate - Passed

Yes: 107 • No: 0

House vote • 5/7/2026

Do Pass as Amended / Short Debate Public Health Committee;

Yes: 9 • No: 0

Senate vote • 4/16/2026

Third Reading - Passed;

Yes: 57 • No: 0

Senate vote • 3/11/2026

Do Pass as Amended Public Health;

Yes: 10 • No: 0

Actions Timeline

  1. Public Act . . . . . . . . . 104-0843

    8/21/2026Senate
  2. Effective Date August 21, 2026

    8/21/2026Senate
  3. Governor Approved

    8/21/2026Senate
  4. Added as Co-Sponsor Sen. Mary Edly-Allen

    6/30/2026Senate
  5. Sent to the Governor

    6/29/2026Senate
  6. Passed Both Houses

    5/31/2026Senate
  7. Senate Concurs

    5/31/2026Senate
  8. House Committee Amendment No. 1 Senate Concurs 054-000-000

    5/31/2026Senate
  9. Added as Co-Sponsor Sen. Cristina Castro

    5/30/2026Senate
  10. House Committee Amendment No. 1 Motion To Concur Recommended Do Adopt Public Health; 008-000-000

    5/28/2026Senate
  11. House Committee Amendment No. 1 Motion to Concur Assignments Referred to Public Health

    5/28/2026Senate
  12. House Committee Amendment No. 1 Motion to Concur Referred to Assignments

    5/28/2026Senate
  13. House Committee Amendment No. 1 Motion to Concur Filed with Secretary Sen. Julie A. Morrison

    5/28/2026Senate
  14. Placed on Calendar Order of Concurrence House Amendment(s) 1 - May 25, 2026

    5/22/2026Senate
  15. Secretary's Desk - Concurrence House Amendment(s) 1

    5/22/2026Senate
  16. Third Reading - Short Debate - Passed 107-000-000

    5/21/2026House
  17. Placed on Calendar Order of 3rd Reading - Short Debate

    5/19/2026House
  18. Second Reading - Short Debate

    5/19/2026House
  19. Placed on Calendar 2nd Reading - Short Debate

    5/7/2026House
  20. Do Pass as Amended / Short Debate Public Health Committee; 009-000-000

    5/7/2026House
  21. House Committee Amendment No. 1 Adopted in Public Health Committee; by Voice Vote

    5/7/2026House
  22. House Committee Amendment No. 1 Rules Refers to Public Health Committee

    5/5/2026House
  23. Added Alternate Chief Co-Sponsor Rep. Camille Y. Lilly

    5/5/2026House
  24. Added Alternate Chief Co-Sponsor Rep. Jehan Gordon-Booth

    5/5/2026House
  25. Added Alternate Co-Sponsor Rep. Marcus C. Evans, Jr.

    5/5/2026House

Bill Text

  • Engrossed

  • Enrolled

  • House Amendment 1

  • Introduced

  • Senate Amendment 1

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