Endometriosis CARE Act
Sponsored By: Representative Williams (GA)
Introduced
Summary
This bill would create a federal program to expand research, data, and access to care for endometriosis. It would fund NIH research, require HHS to study access barriers and insurance and Medicaid data, and support public education, provider guidance, and a National Academies disparities study.
Show full summary
- Families and patients would get more public education, culturally and linguistically appropriate mental health support, and an internet clearinghouse of information for patients and clinicians.
- Health care professionals would receive funded dissemination of evidence-based guidance and training, with $2 million per year authorized for 2026–2030 to support provider outreach.
- Researchers and federal programs would get enhanced data collection and surveillance through $50 million per year for 2026–2030 for NIH activities, and the National Academies would complete a disparities study authorized at $500,000.
*Would authorize about $270.5 million in appropriations for 2026–2030 and therefore increase federal spending.*
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Bill Overview
Analyzed Economic Effects
3 provisions identified: 2 benefits, 0 costs, 1 mixed.
More NIH endometriosis research funding
If enacted, the bill would authorize the NIH Director to fund data collection, surveillance, and research on endometriosis. It would provide $50 million per year for each of fiscal years 2026 through 2030 for those activities. The NIH Director would also be allowed to create or expand an online clearinghouse to collect research and treatment information for patients and clinicians.
Public and provider endometriosis education
If enacted, the bill would require HHS to run a public education program about endometriosis and to share evidence-based guidance with health care professionals. Each activity is authorized at $2 million per year for fiscal years 2026 through 2030. The public materials would target racial and ethnic minority and other underserved groups and include culturally and linguistically appropriate mental health supports.
Study and data review on endometriosis disparities
If enacted, the bill would require HHS to analyze barriers to accessing endometriosis treatments, including transportation and provider shortages. HHS could use T-MSIS Medicaid/CHIP data and require group health plans, issuers, and State Medicaid/CHIP programs to provide or report data, with demographic breakdowns and privacy protections. The bill would also direct HHS to seek an agreement within 90 days with the National Academies to study disparities and to publish a report within 24 months, and it authorizes $500,000 for that study.
Sponsors & CoSponsors
Sponsor
Williams (GA)
GA • D
Cosponsors
Underwood
IL • D
Sponsored 12/11/2025
Adams
NC • D
Sponsored 12/11/2025
Cisneros
CA • D
Sponsored 12/11/2025
Clarke (NY)
NY • D
Sponsored 12/11/2025
Friedman
CA • D
Sponsored 12/11/2025
Frost
FL • D
Sponsored 12/11/2025
Goldman (NY)
NY • D
Sponsored 12/11/2025
Rescom. Hernández, Pablo Jose [D-PR-At Large]
PR • D
Sponsored 12/11/2025
Kennedy (NY)
NY • D
Sponsored 12/11/2025
McIver
NJ • D
Sponsored 12/11/2025
Del. Norton, Eleanor Holmes [D-DC-At Large]
DC • D
Sponsored 12/11/2025
Pocan
WI • D
Sponsored 12/11/2025
Scott, David
GA • D
Sponsored 12/11/2025
Tlaib
MI • D
Sponsored 12/11/2025
Tonko
NY • D
Sponsored 12/11/2025
Watson Coleman
NJ • D
Sponsored 12/11/2025
Bishop
GA • D
Sponsored 12/11/2025
Moulton
MA • D
Sponsored 12/11/2025
Brown
OH • D
Sponsored 12/11/2025
Lofgren
CA • D
Sponsored 12/11/2025
Gottheimer
NJ • D
Sponsored 12/11/2025
Trahan
MA • D
Sponsored 12/30/2025
McClain Delaney
MD • D
Sponsored 12/30/2025
Roll Call Votes
No roll call votes available for this bill.
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