UtahH.B. 1992026 General SessionHouseWALLET

Health Data Amendments

Sponsored By: Norman K Thurston (Republican)

Signed by Governor

Substance AbuseHealth and Human ServicesMental HealthLegislative OperationsSunsets and RepealersHealth Care StatisticsDepartment of Health and Human ServicesLocal Health DepartmentsLocal Mental Health AuthoritiesLocal Substance Abuse AuthoritiesPublic Health

Your PRIA Score

Score Hidden

Personalized for You

How does this bill affect your finances?

Sign up for a PRIA Policy Scan to see your personalized alignment score for this bill and every other piece of legislation we track. We analyze your financial profile against policy provisions to show you exactly what matters to your wallet.

Free to start

Bill Overview

Analyzed Economic Effects

15 provisions identified: 4 benefits, 7 costs, 4 mixed.

Children’s coverage program ends July 2025

The Children’s Health Care Coverage Program is repealed on July 1, 2025. Families lose this program’s legal authority and any benefits tied to it on that date.

Hospital assessments and health funds sunset

The hospital provider assessment ends July 1, 2028. The inpatient and Medicaid expansion hospital assessments end July 1, 2034. The Medicaid ACA Fund is repealed July 1, 2034 and the Alternative Eligibility Expendable Revenue Fund is repealed July 1, 2028. The Brain and Spinal Cord Injury Fund is repealed July 1, 2029. These changes alter how Utah finances Medicaid and related health programs, which can affect hospital payments and coverage.

Stronger privacy and opt-out for health data

Beginning May 6, 2026, the department must encrypt identifiable health data when stored and when sent. It keeps this data strictly confidential and bans any attempt to identify people from shared data. You can opt out. If you opt out, the department may not use or share your identifiable data, even past data. The department must use the least personal data needed, may use direct identifiers only for narrow tasks, and may not share any part of your Social Security number.

Stronger privacy rules for health data

The department may share identifiable data only with the immunization system, the Utah Cancer Registry, or the state medical examiner. Other sharing with local health entities must exclude direct identifiers. Anyone who gets identifiable data must use HIPAA‑level safeguards, get approval for any re‑sharing, and usually share only by control number. Recipients must delete data when the allowed period ends or they no longer need it. If you opt out, recipients must delete your identifiable data. Substance use records marked as Part 2 are protected under federal Part 2 rules.

Public plans to guide health data work

Beginning May 6, 2026, the department must publish three plans: a strategic plan, a data management plan, and a data analytics and sharing plan. The plans set what data is needed, from whom, in what format, and how it is checked and shared while preventing reidentification. The law directs data use to improve access, choice, quality, costs, and public health. It also updates definitions to clarify who and what is covered.

Health advisory councils set to end

Several statewide health advisory bodies are repealed on future dates. These include the Digital Health Service Commission (July 1, 2025), the Primary Care Grant Committee (statute removed July 1, 2035, and related references repealed), the Health Data Committee (July 1, 2036), the Brain and Spinal Cord Injury Advisory Committee (July 1, 2029), the Health Workforce Advisory Council (July 1, 2027), and the Coordinating Council for Persons with Disabilities (July 1, 2027). The Utah Health Data Authority also sunsets on July 1, 2036. These changes reduce formal, statutory advice and oversight roles.

Behavioral health and crisis programs sunset

The law schedules the end of many behavioral health and mobile crisis provisions between 2024 and 2033. It also removes a requirement to consult the Behavioral Health Crisis Response Committee on December 31, 2026. These changes can reduce grants, services, and coordination for people who use crisis and behavioral health programs.

Youth and child health programs end

The state ends several youth and child health efforts on set dates. The Youth Prevention Committee and program end July 1, 2030, and related statutory references are removed. The Early Childhood Utah Advisory Council ends July 1, 2029. The Newborn Hearing Screening Committee ends July 1, 2026. The CHAT adolescent prevention pilot ends July 1, 2029. The child care drinking water quality statute ends July 1, 2027.

New reporting and data fees for health payers

After it adopts its plan, the department can require data suppliers such as payers and providers to submit fee schedules, discounts, capitations, and contract terms, as federal law allows. It may not publish data that reveals the exact terms of a current contract between a single provider and a single payer. The department can charge people or companies who use its data to help cover collection costs. These rules take effect May 6, 2026.

Medicaid drug review board ends 2027

On July 1, 2027, the state repeals the Drug Utilization Review board and related rules. This changes how Medicaid reviews and approves medicines, prior approvals, and pharmacy oversight.

State builds claims database for prices

The department, as funding allows, creates an All Payer Claims Database to collect cost and claims data. It shares data with the Insurance Department for risk adjustment and rate review. It reports where prices are higher and flags increases above CPI Medical (measured June to June). It sends monthly enrollment data to a nonprofit coalition, publishes air ambulance charges, and supports the state auditor’s price tool. It restricts publishing so specific contract terms are not revealed. The law takes effect May 6, 2026.

New rules for health data suppliers

The department must make formal rules when the law requires action by people outside the department. If a data request would cost a supplier too much, the department must try to change it or pay the unreasonable costs. A supplier is not liable if an authorized recipient later causes a breach.

Grants and reimbursements end for care

The state ends several payment supports. Reimbursement for a diabetes prevention program ends June 30, 2027. A dental hygienist reimbursement clause ends July 1, 2028. The Rare Disease Advisory Council grant program ends July 1, 2026. People and providers who used these payments may lose that support after those dates.

Hepatitis C outreach pilot ends 2028

The Hepatitis C Outreach Pilot Program ends on July 1, 2028. People who relied on that outreach may lose those resources after that date.

Rural doctor training program ends 2025

The rural residency training program is repealed on July 1, 2025. Ending the program may reduce rural training slots and affect the clinician pipeline.

Free Policy Watch

You just read the policy. Now see what it costs you.

Pick a topic. PRIA runs your household against live legislation and sends you a free personalized readout.

Pick a topic to get started

Sponsors & Cosponsors

Sponsor

  • Norman K Thurston

    Republican • House

Cosponsors

  • Kirk A. Cullimore

    Republican • Senate

Roll Call Votes

All Roll Calls

Yes: 146 • No: 4

Senate vote 2/12/2026

Senate/ passed 3rd reading

Yes: 29 • No: 0

Senate vote 2/11/2026

Senate/ uncircled

Yes: 0 • No: 0

Senate vote 2/11/2026

Senate/ passed 2nd reading

Yes: 28 • No: 0

Senate vote 2/5/2026

Senate/ circled

Yes: 0 • No: 0

House vote 2/3/2026

Senate Comm - Favorable Recommendation

Yes: 5 • No: 0

House vote 1/29/2026

House/ passed 3rd reading

Yes: 70 • No: 1

House vote 1/29/2026

House/ substituted

Yes: 0 • No: 0

House vote 1/22/2026

House Comm - Amendment Recommendation

Yes: 9 • No: 0

House vote 1/22/2026

House Comm - Favorable Recommendation

Yes: 5 • No: 3

Actions Timeline

  1. Governor Signed

    3/17/2026
  2. House/ to Governor

    3/12/2026House
  3. House/ received enrolled bill from Printing

    3/12/2026House
  4. House/ enrolled bill to Printing

    3/5/2026House
  5. Enrolled Bill Returned to House or Senate

    3/5/2026
  6. Draft of Enrolled Bill Prepared

    2/17/2026
  7. Bill Received from House for Enrolling

    2/17/2026
  8. House/ signed by Speaker/ sent for enrolling

    2/17/2026House
  9. House/ received from Senate

    2/17/2026House
  10. Senate/ to House

    2/12/2026Senate
  11. Senate/ signed by President/ returned to House

    2/12/2026Senate
  12. Senate/ passed 3rd reading

    2/12/2026Senate
  13. Senate/ 3rd reading

    2/12/2026Senate
  14. Senate/ passed 2nd reading

    2/11/2026Senate
  15. Senate/ uncircled

    2/11/2026Senate
  16. Senate/ circled

    2/5/2026Senate
  17. Senate/ 2nd reading

    2/5/2026Senate
  18. Senate/ placed on 2nd Reading Calendar

    2/4/2026Senate
  19. Senate/ committee report favorable

    2/4/2026Senate
  20. Senate Comm - Favorable Recommendation

    2/3/2026
  21. Senate/ to standing committee

    2/3/2026Senate
  22. Senate/ 1st reading (Introduced)

    1/30/2026Senate
  23. Senate/ received from House

    1/29/2026Senate
  24. House/ to Senate

    1/29/2026House
  25. House/ passed 3rd reading

    1/29/2026House

Bill Text

  • Enrolled

    3/5/2026

  • Substitute #1

    1/27/2026

  • Amended 1/23/2026 11:01:847

    1/23/2026

  • Introduced

    1/8/2026

Related Bills

Back to State Legislation

Take It Personal

Get Your Personalized Policy View

Take the PRIA Score to see how policy affects your household, then upgrade to PRIA Full Coverage for year-round monitoring.

Already have an account? Sign in