Shape CDC's Tic Disorder Tracking Form for Kids—Speak Up!
Published Date: 6/12/2025
Notice
Summary
The CDC is asking for your thoughts on a new form about tracking tic disorders like Tourette Syndrome in kids and young adults. They want to make sure the form is useful, clear, and not too much work to fill out. You’ve got 30 days to share your ideas before the government decides, so don’t miss your chance to help shape this important health project!
Analyzed Economic Effects
2 provisions identified: 1 benefits, 1 costs, 0 mixed.
Estimated time cost to participants
If you are a caregiver or a person aged 18–26 with persistent tic disorder, CDC expects this study will require time to participate. CDC estimates a total of 500 annual burden hours across respondents, including 300 parent responses at 45 minutes each, 60 child (4–8) responses at 20 minutes each, 100 child (9–11) responses at 30 minutes each, 140 adolescent (12–17) responses at 45 minutes each, and 100 adult (18–26) responses at 1 hour each. There is no cost to respondents other than their time to participate.
Data to guide support and trainings
CDC will use the collected survey, clinical assessment, and medical-record data to document outcomes (including costs, suicidality risk, transition to adult care, and co-occurring conditions) and to inform where resources for families and healthcare providers (for example, professional trainings) are most needed to support people with persistent tic disorders and to address subgroup differences.
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Key Dates
Department and Agencies
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