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119-hr-5355119th CongressWALLET

Ian Kalvinskas Pediatric Liver Cancer Early Detection and Screening Act

Sponsored By: Representative Costa, Jim [D-CA-21]

Introduced

Summary

Early detection of pediatric liver disease by expanding public education and evaluating newborn screening. The bill would direct HHS to create plain-language outreach and require a Government Accountability Office study of screening, treatment initiatives, and transplant outcomes.

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  • Families: Parents and caregivers would receive clear materials on early signs of pediatric liver disease and information about the option and safety of living liver donation.
  • State newborn-screening programs: GAO would study the cost-effectiveness of adding direct-bilirubin to newborn panels for biliary atresia and other cholestatic diseases to inform state screening decisions.
  • Transplant patients and equity advocates: GAO would review federally funded efforts to improve early detection and treatment and report trends in pediatric liver-transplant wait-list mortality by geography, race, insurance, diagnosis, and illness severity. The GAO report on that study would be due within one year of enactment.
  • Program delivery and oversight: HHS would develop materials through the Health Resources and Services Administration with CDC input and could share them via existing cancer-control and organ-donation campaigns. GAO would also report on the education program’s results within three years of program start. No additional funds are authorized for the public-education program.

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Bill Overview

Analyzed Economic Effects

1 provisions identified: 1 benefits, 0 costs, 0 mixed.

Liver disease and donation info for families

HHS, through HRSA and with CDC, would create easy-to-read materials on early signs of liver disease in children. It would also explain the option and safety of living liver donation. CDC and other HHS campaigns could help share the materials. No new money would be authorized for this program. GAO would report to Congress on results no later than 3 years after the program starts.

Sponsors & CoSponsors

Sponsor

Costa, Jim [D-CA-21]

CA • D

Cosponsors

  • Rep. Beatty, Joyce [D-OH-3]

    OH • D

    Sponsored 10/5/2026

  • Rep. Van Duyne, Beth [R-TX-24]

    TX • R

    Sponsored 9/15/2025

  • Del. Norton, Eleanor Holmes [D-DC-At Large]

    DC • D

    Sponsored 9/26/2025

  • Rep. Huizenga, Bill [R-MI-4]

    MI • R

    Sponsored 9/26/2025

  • Rep. Bresnahan, Robert P. [R-PA-8]

    PA • R

    Sponsored 9/30/2025

  • Rep. Wasserman Schultz, Debbie [D-FL-25]

    FL • D

    Sponsored 10/6/2025

  • Rep. Gottheimer, Josh [D-NJ-5]

    NJ • D

    Sponsored 10/14/2025

  • Del. Moylan, James C. [R-GU-At Large]

    GU • R

    Sponsored 10/15/2026

  • Rep. Wilson, Joe [R-SC-2]

    SC • R

    Sponsored 10/22/2026

  • Rep. Jackson, Jonathan L. [D-IL-1]

    IL • D

    Sponsored 10/22/2026

  • Rep. Tlaib, Rashida [D-MI-12]

    MI • D

    Sponsored 1/6/2026

  • Rep. Bacon, Don [R-NE-2]

    NE • R

    Sponsored 1/6/2026

  • Rep. Dingell, Debbie [D-MI-6]

    MI • D

    Sponsored 1/7/2026

  • Rep. Mackenzie, Ryan [R-PA-7]

    PA • R

    Sponsored 1/12/2026

  • Rep. Davis, Donald G. [D-NC-1]

    NC • D

    Sponsored 5/13/2026

  • Rep. Clarke, Yvette D. [D-NY-9]

    NY • D

    Sponsored 7/13/2026

  • Rep. Lawler, Michael [R-NY-17]

    NY • R

    Sponsored 7/16/2026

Roll Call Votes

No roll call votes available for this bill.

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