PRIA Logo™
MontanaHB 94369th Legislature, Regular Session (2025)HouseWALLET

Establish the Montana rare disease advisory council

Sponsored By: Paul Tuss (Democrat)

Became Law

Health Care ServicesAppropriations

Your PRIA Score

Score Hidden

Personalized for You

How does this bill affect your finances?

Sign up for a PRIA Policy Scan to see your personalized alignment score for this bill and every other piece of legislation we track. We analyze your financial profile against policy provisions to show you exactly what matters to your wallet.

Free to start

Bill Overview

Analyzed Economic Effects

1 provisions identified: 1 benefits, 0 costs, 0 mixed.

Montana rare disease council begins work

Beginning July 1, 2025, Montana's health department houses a Rare Disease Advisory Council. The governor appoints 17 members, including patients, a caregiver, clinicians, researchers, a health plan, industry, and state agencies. The governor names an initial presiding officer within 30 days for a 3-year term; other terms last up to 4 years and may be staggered. The council meets within 90 days, monthly in year one, and at least quarterly after. It holds public hearings, takes public comment, and posts notices, minutes, and a list of rare-disease resources on the DPHHS website. It reports to the governor and legislature within one year and every year after, and may seek grants and donations. The law provides $16,000 from the general fund for the two-year budget starting July 1, 2025 to cover council costs, and the legislature intends this to be part of the base.

Sponsors & Cosponsors

Sponsor

  • Paul Tuss

    Democrat • House

Cosponsors

  • Dennis Lenz

    Republican • Senate

Roll Call Votes

All Roll Calls

Yes: 199 • No: 93

House vote • 4/18/2025

Do Concur

Yes: 35 • No: 15

House vote • 4/17/2025

Do Concur

Yes: 34 • No: 14

House vote • 4/8/2025

Do Pass

Yes: 63 • No: 34

House vote • 4/7/2025

Do Pass

Yes: 67 • No: 30

Actions Timeline

  1. Chapter Number Assigned

    5/19/2025House

  2. Signed by Governor

    5/13/2025House

  3. Transmitted to Governor

    5/7/2025House

  4. Signed by President

    5/6/2025Senate

  5. Signed by Speaker

    5/2/2025House

  6. Returned from Enrolling

    4/24/2025House

  7. Sent to Enrolling

    4/18/2025House

  8. 3rd Reading Concurred

    4/18/2025Senate

  9. 2nd Reading Concurred

    4/17/2025Senate

  10. Committee Report--Bill Concurred

    4/15/2025Senate

  11. Committee Executive Action--Bill Concurred

    4/14/2025Senate

  12. Hearing

    4/11/2025Senate

  13. Referred to Committee

    4/10/2025Senate

  14. First Reading

    4/9/2025Senate

  15. Transmitted to Senate

    4/8/2025House

  16. 3rd Reading Passed

    4/8/2025House

  17. 2nd Reading Passed

    4/7/2025House

  18. Committee Report--Bill Passed

    4/3/2025House

  19. Committee Executive Action--Bill Passed

    4/3/2025House

  20. Hearing

    4/3/2025House

  21. Fiscal Note Printed

    4/2/2025House

  22. Fiscal Note Signed

    4/2/2025House

  23. Fiscal Note Received

    4/2/2025House

  24. First Reading

    3/31/2025House

  25. Referred to Committee

    3/31/2025House

Bill Text

  • Enrolled

    4/22/2025

    PDF

  • Introduced

    3/31/2025

    PDF

Related Bills

Back to State Legislation