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118-hr-7189118th CongressWALLET

Congenital Heart Futures Reauthorization Act of 2024

Sponsored By: Representative Bilirakis, Gus M. [R-FL-12]

Became Law

Summary

Reauthorizes the national congenital heart disease research, surveillance, and awareness program. It adds required reporting and a national strategy to improve public awareness, provider training, and care for adults living with congenital heart disease.

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  • Families and patients: Focuses research and awareness on lifelong needs, long-term health outcomes, mental health, and quality of life, which could guide better services and information for patients and caregivers.
  • Health care providers: Directs HHS to report on provider education and workforce capacity for adult congenital heart disease and to recommend ways to expand fellowship and continuing education programs.
  • Federal coordination and stakeholders: Requires consultation with patient organizations, clinicians, researchers, insurers, accrediting bodies, and agencies like the CDC, NIH, and HRSA to foster information sharing and collaboration.
  • Timing and scope: The Secretary must deliver the report within 2 years and the strategy within 1 year after that report. The law extends the program period to 2025–2029 and does not create new funding appropriations in this section.

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Bill Overview

Analyzed Economic Effects

1 provisions identified: 1 benefits, 0 costs, 0 mixed.

Congenital heart program extended and planning required

The law keeps the national congenital heart research, tracking, and awareness program going for 2025 through 2029. It does not add new funding or change who qualifies. Within 2 years, HHS reports to Congress on awareness, provider training, and the adult congenital heart care workforce. Within 1 year after that report, HHS submits a strategy to close awareness and research gaps on lifelong needs, ease provider shortages, and expand training. HHS must consult patient groups, clinicians, insurers, researchers, and agencies like CDC, NIH, and HRSA, and foster information‑sharing across them.

Sponsors & CoSponsors

Sponsor

Bilirakis, Gus M. [R-FL-12]

FL • R

Cosponsors

  • Rep. Soto, Darren [D-FL-9]

    FL • D

    Sponsored 2/1/2024

  • Rep. Carter, Earl L. "Buddy" [R-GA-1]

    GA • R

    Sponsored 2/1/2024

  • Sen. Schiff, Adam B. [D-CA]

    CA • D

    Sponsored 2/1/2024

  • Rep. Salazar, Maria Elvira [R-FL-27]

    FL • R

    Sponsored 2/1/2024

  • Rep. Cárdenas, Tony [D-CA-29]

    CA • D

    Sponsored 2/1/2024

Roll Call Votes

No roll call votes available for this bill.

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