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119-hr8839119th CongressWALLET
Lainie Jones Comprehensive Cancer Survivorship Act of 2026
Sponsored By: Representative Wasserman Schultz, Debbie [D-FL-25]
Introduced
Summary
creates a federal framework to improve cancer survivorship outcomes. It would set standards, new payments, coverage rules, grants, and employment supports to help people live with and after cancer.
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- Cancer survivors and families would receive standardized survivorship care plans, treatment summaries, survivorship navigation, and psychosocial supports. Medicare would add a paid benefit for cancer care planning and coordination, initially paid at the same rate as transitional care management services.
- Children and adolescent survivors would get Medicaid transition services with at least two survivorship transition visits per year. Medicaid and CHIP would be required to cover cancer fertility services with no cost-sharing and long-term storage for preserved material of at least 15 years for minors and 10 years for adults; the fertility coverage is effective October 1, 2026.
- Workers and caregivers would benefit from a Department of Labor grant program that funds nonprofits to provide employment supports like transportation, childcare, paid-leave assistance, help applying for Social Security, and referrals to workforce training.
- Providers and payers would face a new alternative payment model requirement for Medicare and Medicaid to be developed within one year, with design details reported to Congress and explicit inclusion of genetic counselors and mental health professionals.
- Community groups, NCI centers, and state programs could get grants starting within 18 months to expand quality-of-life services and navigation. The bill also creates an Office of Cancer Survivorship at the National Cancer Institute and requires a Government Accountability Office study to begin within 6 months.
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Bill Overview
Analyzed Economic Effects
8 provisions identified: 8 benefits, 0 costs, 0 mixed.
Definitions for survivors and caregivers
If enacted, the bill would define key terms used across the Act. It would define 'cancer survivor' as someone from diagnosis through the rest of life. It would define 'caregiver', 'treatment summary', 'survivorship care plan', and 'survivorship navigation' so programs know who is eligible and what information should be shared.
Grants to help cancer survivors
If enacted, HHS would award grants to state cancer programs, NCI-designated centers, and community groups to improve survivors' quality of life. Grants would fund mental health care, navigation to implement survivorship care plans, physical activity programs, nutrition counseling, and help keeping up with screening. The grant program would start no later than 18 months after enactment and require semiannual reporting from grantees.
Medicaid coverage for child cancer survivors
If enacted, the bill would let States provide Medicaid coverage for healthcare transition services for childhood and adolescent cancer survivors despite the usual comparability rules. The services would follow Children's Oncology Group exposure-based standards and include at least two survivorship transition visits per year. This change would allow more transition and follow-up services for child and adolescent survivors enrolled in Medicaid.
New Medicare cancer care planning
If enacted, Medicare would cover 'cancer care planning and coordination services' for people diagnosed with cancer. The plans must be written or electronic, include an Institute of Medicine care plan and treatment summary, and be culturally appropriate. Services may be provided at diagnosis, key transitions, or recurrence. Payment would begin the first day of the first calendar year after enactment and the initial fee schedule rate would match transitional care management (CPT 99496) unless the Secretary changes it.
Job and work support for survivors
If enacted, the Labor Department would run a grant program, in consultation with HHS, to help eligible cancer survivors and their families. Grants could pay for transportation, childcare, food supports, physical activity and psychosocial help, short-term financial help during medical leave, help with continuation coverage premiums, and help applying for SSI, disability, Medicaid, Medicare enrollment, or WIOA services. The program would start upon enactment and apply to survivors who fit the Act's 'eligible cancer survivor' categories.
Medicare and Medicaid survivorship payment model
If enacted, the Secretary would design an alternative payment model for survivorship care under Medicare and Medicaid within one year. The plan would describe episode rules, bundled payments, required survivorship care plans, navigation services, eligible providers (including genetic counselors and mental health professionals), risk stratification, and how to test the model. The Secretary would report the model plan to Congress.
GAO study on cancer survivorship progress
If enacted, HHS would ask the Government Accountability Office to study progress in cancer survivorship within six months. The GAO study would review care quality, transitions, outcomes, disparities, system capacity, community services, and payment. The Comptroller General would publish a report and hold public meetings when the report is released.
Federal guidance on survivorship tools
If enacted, HHS would convene patients, doctors, tech vendors, and others to review tools for consolidating treatment history and survivorship guidelines. HHS would publish patient and provider resources on making and using survivorship care plans within 36 months. The Department would work with the Office for Civil Rights on privacy and security of these tools.
Sponsors & CoSponsors
Sponsor
Wasserman Schultz, Debbie [D-FL-25]
FL • D
Cosponsors
Rep. Fitzpatrick, Brian K. [R-PA-1]
PA • R
Sponsored 5/14/2026
Rep. DeSaulnier, Mark [D-CA-10]
CA • D
Sponsored 5/14/2026
Rep. Wilson, Joe [R-SC-2]
SC • R
Sponsored 5/14/2026
Rep. Kennedy, Timothy M. [D-NY-26]
NY • D
Sponsored 5/14/2026
Del. Norton, Eleanor Holmes [D-DC-At Large]
DC • D
Sponsored 5/21/2026
Rep. Wilson, Frederica S. [D-FL-24]
FL • D
Sponsored 5/21/2026
Rep. Elfreth, Sarah [D-MD-3]
MD • D
Sponsored 5/21/2026
Rep. Cohen, Steve [D-TN-9]
TN • D
Sponsored 5/21/2026
Rep. Bishop, Sanford D. [D-GA-2]
GA • D
Sponsored 6/2/2026
Rep. Johnson, Henry C. "Hank" [D-GA-4]
GA • D
Sponsored 6/2/2026
Rep. Gottheimer, Josh [D-NJ-5]
NJ • D
Sponsored 6/2/2026
Rep. Doggett, Lloyd [D-TX-37]
TX • D
Sponsored 6/2/2026
Rep. Raskin, Jamie [D-MD-8]
MD • D
Sponsored 6/2/2026
Rep. Thompson, Glenn [R-PA-15]
PA • R
Sponsored 6/29/2026
Rep. Grijalva, Adelita S. [D-AZ-7]
AZ • D
Sponsored 6/29/2026
Rep. Moskowitz, Jared [D-FL-23]
FL • D
Sponsored 7/9/2026
Rep. Hayes, Jahana [D-CT-5]
CT • D
Sponsored 7/16/2026
Rep. Walkinshaw, James R. [D-VA-11]
VA • D
Sponsored 7/22/2026
Rep. Jackson, Jonathan L. [D-IL-1]
IL • D
Sponsored 7/22/2026
Rep. Simon, Lateefah [D-CA-12]
CA • D
Sponsored 7/27/2026
Rep. Scanlon, Mary Gay [D-PA-5]
PA • D
Sponsored 7/27/2026
Rep. Moulton, Seth [D-MA-6]
MA • D
Sponsored 8/17/2026
Rep. Thanedar, Shri [D-MI-13]
MI • D
Sponsored 8/17/2026
Rep. Clarke, Yvette D. [D-NY-9]
NY • D
Sponsored 8/17/2026
Roll Call Votes
No roll call votes available for this bill.
View on Congress.gov