Childhood Cancer STAR Reauthorization Act
Sponsored By: Senator Reed, Jack [D-RI]
Became Law
Summary
Broaden childhood cancer survivorship research and biospecimen access. This law expands what clinical biobanks can store, turns pilot survivorship efforts into funded research, and requires steps to strengthen the pediatric psychosocial care workforce.
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- Families and survivors: Research and care will focus more on long-term needs for children and adolescents. The law requires tools for secure electronic transfer of treatment records and survivorship care summaries between health care providers or, when appropriate, longitudinal cohorts.
- Researchers and biorepositories: Biobanks may now collect solid tumor samples and paired samples. The National Institutes of Health must review researcher access procedures and report findings to congressional health committees within 2 years, and program funding references are updated to 2024–2028.
- Health care providers and workforce: The law replaces pilot-program language with active research funding and requires recommendations to boost workforce development for clinicians who deliver psychosocial care to pediatric cancer patients and survivors.
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Bill Overview
Analyzed Economic Effects
2 provisions identified: 2 benefits, 0 costs, 0 mixed.
Grants boost care for young survivors
The law requires grants to support research on childhood and adolescent cancer survivorship. Awards focus on testing care approaches, not just small pilots. Projects must build secure tools to share treatment records and care summaries between providers or, when appropriate, long-term survivor cohorts. HHS also develops recommendations to grow the workforce for psychosocial care. Survivors and care teams get better support and coordination.
More childhood cancer samples for research
The law keeps the children's cancer biorepository running through 2028. It adds solid tumor samples and paired samples to what can be stored. NIH must review access and privacy rules for these samples and report to Congress within two years of enactment. This supports stronger, privacy-protected research on childhood cancers.
Sponsors & CoSponsors
Sponsor
Reed, Jack [D-RI]
RI • D
Cosponsors
There are no cosponsors for this bill.
Roll Call Votes
No roll call votes available for this bill.
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