Lainie Jones Comprehensive Cancer Survivorship Act of 2026
Sponsored By: Senator Klobuchar, Amy [D-MN]
Introduced
Summary
This bill would create a new Medicare benefit for cancer care planning and coordination services that funds individualized survivorship care plans and pushes federal programs to expand supports for cancer survivors. It focuses on coverage, community grants, research, and payment and IT guidance to ease transitions from treatment to long-term survivorship care.
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- Would let Medicare cover development and delivery of individualized treatment and survivorship care plans at diagnosis, treatment changes, end of active treatment, and recurrence. Payment parity with transitional care management would be set equal to the Medicare rate for CPT code 99496.
- Would require Medicaid and CHIP to cover healthcare transitions for childhood and adolescent cancer survivors, including at least two survivorship transition visits per year. It would also require coverage of cancer fertility services and ban cost-sharing in Medicaid and CHIP, with CHIP fertility coverage effective October 1, 2026.
- Would create a Comprehensive Cancer Survivorship Program with grants for state cancer programs, NCI-designated centers, and community groups to fund navigation, mental health, nutrition, physical activity, and screening supports. It would establish an Office of Cancer Survivorship at the National Cancer Institute, require a GAO study within 6 months, and start the quality-of-life grant program within 18 months.
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Bill Overview
Analyzed Economic Effects
8 provisions identified: 8 benefits, 0 costs, 0 mixed.
Community survivorship grants
If enacted, HHS would start a grant program within 18 months to fund state cancer programs, NCI centers, and community groups. Grants would pay for exercise and nutrition programs, tobacco cessation, mental health and anxiety services, patient navigation, and help following screening plans. Grantees must report twice a year so the Secretary can analyze results and share best practices.
Medicaid and CHIP fertility coverage
If enacted, Medicaid and CHIP would be required to cover "cancer fertility services" for people diagnosed with cancer who face treatment-related infertility. Coverage would include fertility treatment, preservation, and storage costs. Storage must be at least 15 years for those under 18 and at least 10 years for adults. Medicaid and CHIP could not charge cost-sharing for these services. CHIP changes take effect October 1, 2026; other Medicaid and CHIP rules apply to care furnished 18 months after enactment.
Medicaid care transitions for child survivors
If enacted, Medicaid state plans would have to cover transition services for childhood and adolescent cancer survivors. The services must include development and delivery of survivorship care plans to patients, families, and primary care providers and follow Children's Oncology Group long-term follow-up guidelines. The law would require at least two survivorship transition visits per year. These provisions would apply to care furnished after 18 months from enactment as specified.
Medicare survivorship visits and payment
If enacted, Medicare would cover a new "cancer care planning and coordination" visit that gives you a written or electronic survivorship plan. The bill would set initial provider payment equal to the Medicare rate for transitional care management (CPT 99496). HHS would also have to design an alternative payment model for Medicare and Medicaid survivorship care and report details to Congress within one year. The new Medicare benefit would apply to services furnished on or after the first day of the first calendar year after enactment.
Job and training help for survivors
If enacted, the Department of Labor would award grants to nonprofits to help cancer survivors stay in or return to work. Grants could pay for transportation, childcare, food support, short-term financial help during medical leave, help with insurance continuation premiums, job training, and help applying for SSI, Social Security disability, Medicaid, or Medicare. The program would start upon enactment.
New NCI office for survivorship
If enacted, the National Cancer Institute would create an Office of Cancer Survivorship inside the NCI director's office. The office would fund survivorship research, teach clinicians best practices, and provide survivor education on long-term effects and follow-up care. This is a system-level change meant to improve care and information for survivors.
GAO study on survivorship care
If enacted, HHS would ask the Government Accountability Office within six months to study progress in cancer survivorship since 1971. The GAO would examine quality of care, transitions, quality of life, disparities, community programs, and payment. The Comptroller General would hold public meetings and publish a report to inform future policy.
Guidance on survivorship health tools
If enacted, HHS would convene patient groups, providers, EHR vendors, and IT experts and work with the Office for Civil Rights to review electronic survivorship tools. The Secretary would publish patient and provider resources and privacy recommendations within 36 months. The work would guide safer use of apps that consolidate treatment history into survivorship plans.
Sponsors & CoSponsors
Sponsor
Klobuchar, Amy [D-MN]
MN • D
Cosponsors
Sen. Alsobrooks, Angela D. [D-MD]
MD • D
Sponsored 7/21/2026
Roll Call Votes
No roll call votes available for this bill.
View on Congress.gov