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HR8067119th CongressWALLET

Candis King Hope for Sickle Cell Families Act

Sponsored By: Representative Vindman, Eugene Simon [D-VA-7]

Introduced

Summary

Creates a CDC-run Sickle Cell Data Collection program to collect and standardize national data on sickle cell disease. It would fund state grants to track incidence, prevalence, patient demographics, and health care use to improve surveillance methods and data sharing.

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  • Families and patients: Would expand national data on how many people have sickle cell, who they are, and how they use health care. This aims to make population trends and care patterns clearer.
  • State health departments and researchers: Would award grants to states and require collaboration to standardize surveillance methods, with funding set at $10 million per year for FY2027 through FY2031.
  • CDC Division employees: Would require reinstatement of employees of the Division of Blood Disorders and Public Health Genomics who were removed on or after January 1, 2025 as part of workforce actions that removed 3 percent or more of the Division.

*Would authorize $10 million per year for FY2027 through FY2031, totaling $50 million in authorized federal funding.*

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Bill Overview

Analyzed Economic Effects

2 provisions identified: 2 benefits, 0 costs, 0 mixed.

Rehire CDC Division employees

If enacted, the Secretary of Health and Human Services would have to reinstate any employee of the CDC Division of Blood Disorders and Public Health Genomics who was removed on or after January 1, 2025. This applies when the removal was part of an agency action (including a reduction in force under subchapter I of chapter 35 of title 5, U.S. Code, or an agency reorganization) that removed 3 percent or more of the Division's total employees within a 60-day period. Reinstatement would restore the employee's job and likely restore pay and benefits.

Grants to collect sickle cell data

If enacted, the Secretary of Health and Human Services, through the CDC Director, would carry out a Sickle Cell Data Collection program. The program would award grants to States to collect and maintain data on sickle cell incidence, prevalence, patient demographics, and healthcare use. Grants would require collaboration with prior Sickle Cell Data Collection grantees and CDC to increase standardization of surveillance methods. The bill would authorize $10,000,000 for each of fiscal years 2027 through 2031 to carry out the program.

Sponsors & CoSponsors

Sponsor

Vindman, Eugene Simon [D-VA-7]

VA • D

Cosponsors

There are no cosponsors for this bill.

Roll Call Votes

No roll call votes available for this bill.

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